Well I haven’t written in a while. I’m not exactly sure why i’m surprised as *sadly* I have never really been able to follow through on this kind of thing since i’ve been sick. Oh well, i’m back now and that’s what matters.
So since the last time I wrote things haven’t exactly been going very well. To sum it up, i’m getting sicker… or am stuck at a “sicker” level if that makes sense. I was in the hospital for a few days recently because my pain skyrocketed to an unimaginable level that I just couldn’t handle. I have an extremely high pain tolerance (even my pt has remarked at how high it is) yet this was just not something I could tolerate. Thankfully instead of now being a 10+ it is hovering around a 6-7, which for me personally is manageable and tolerable. I saw one pain management specialist last week and am seeing another tomorrow for a second opinion as this new flare of pain is showing no signs of relenting. Queue the sigh. I also have to go get an echocardiogram of my heart since they thought they saw something going on with my heart while I was in the hospital. Because of that and the residents there being extra-cautious, I spent some quality time with a lovely heart monitor. It was a fun time (total sarcasm, fyi) but boy am I glad to be rid of that thing. So back to the echocardiogram. That really isn’t a big deal at all and i’ve had one before, just another appointment. That’s at the end of this week. Then next week I meet with the cardiologist to go over results and all that fun stuff. Yay.
But alas, the fun doesn’t stop there! I think in the first week of September I get to go see a lovely hematologist to try and figure something out as well as schedule iron infusions. I’m sure she is very nice, but again, it’s another doctor and another appointment. This 18 year old is tuckered out and just can’t seem to find a break right now. Taking things one day at a time and trying to find joy in the little things that life has to offer. Would love to hear how everyone else is doing! Stay strong and take things one day at a time!